Thursday, November 14, 2013

Firework Duet

Bradley REALLY likes Katy Perry's song, Firework. He heard it on the movie, Madagascar 3 and very quickly learned the lyrics and melody. We sing it occasionally in the car and at home. I love the message within the lyrics and always felt like it was Bradley's anthem.


My friend, Alexis, sent me this link today and I absolutely loved seeing and hearing this girl with autism sing Firework with Katy Perry. I bawled my eyes out in my office, but they were tears of joy for the beautiful growth of Jodi DiPiazza, the amazing 11-year old girl who is sharing her voice through music.


Monday, November 11, 2013

Bradley Can Read!!!

Perceived "Inattention" is one of the symptoms children on the autism spectrum may initially present with that leads the parent or teacher to look at a potential ADHD diagnosis, rather than an autism spectrum disorder. According to the Diagnostic and Statistical Manual of Mental Disorders, ADHD criteria for inattention include: being easily distracted, having trouble sustaining attention to tasks that require sustained mental effort, and frequently being forgetful in their daily activities.

For many children on the autism spectrum, inattention is actually a result of being overly absorbed in their "own world." Autistic individuals really aren't "inattentive," from the sense of the clinical standpoint. Instead, they are so overly attentive to something else, that they are in a sense "zoning in" on their area of focus and avoiding and often becoming unaware of other stimuli. That is an AMAZING task and ability that many on the autism spectrum are capable of accomplishing. The question then, is how can parents and teachers help autistic children use that awesome power toward their school work?

I prepared myself for Bradley to struggle with reading. In fact.., I expected reading to be Bradley's most challenging subject area. After all, reading would require sustained, mental effort. However, I am ecstatic to report that I was VERY wrong about Bradley's success with reading so far. Bradley's elementary school uses a reading program called SRA. Bradley's tutor and I introduced SRA reading to Bradley over the summer. I helped him work through about 40 lessons, which didn't take as long as you would think it would... I was pleasantly surprised that Bradley has exceeded my reading expectations.

We have worked hard. Bradley seems to do well with sight words. I think he might be memorizing all of the words he is reading... To try to help Bradley with sight words I started writing his color sight words and numbers on his lunch bags. I'm not sure if Bradley enjoys reading the lunch messages as much as I enjoy preparing them, but hopefully they have helped at some level. I started simple and tried to apply what was taught in his classroom.




Yesterday I filmed Bradley completing his reading homework. This is a pretty accurate representation of Bradley's reading ability. I am so proud of the patience he has gained in taking his time to read and focusing on the work. Unfortunately the audio quality is not quite as loud as I thought it was and my 19-month old son, Max, is sitting next to me talking and "reading" too. For best results in listening to the clip, be prepared to turn up your volume and/or use head phones. I tried viewing the video embedded within the blog from my iPhone and was not able to, so if you're having trouble too you may have to view from a computer.

In the video you will seem him get a little distracted by "movie talking." Bradley watched the Will Ferrell movie, "Elf," that day (and the day before) and was thinking about a scene from the movie in his head. This happens multiple times a day with different movies, including some that we have not seen in a while. I am truly fascinated by Bradley's memory to recall the exact script including diction, pausing, and articulation. It's remarkable. Last night I overheard my husband gently questioning Bradley about his movie talk. He asked if Bradley could see the movie in his head when he movie talked. Bradley said yes. There is so much potential with that type of memory and I continue to look for a way to help Bradley use that super power for good.

What you'll also notice at the end of the video clip is Bradley walking away, on his tip toes. I notice that Bradley does more tippy toe walking when he is barefoot and on our concrete floors. When he wears heavier shoes, specifically his cowboy boots, Bradley walks flat footed. I also think there is a correlation between his excitement level and tippy toe walking. Bradley seems to tip toe walk when he is more excited or anxious when compared to when he is relaxed. This is a form of "stimming" that many other autistic individuals may display.

Sunday, November 10, 2013

Iron Men

Bradley loves dressing up. He likes to wear hats, colorful clothing combinations, rubber boots, glasses, cowboy boots, and costumes. When we picked out Bradley's Halloween costume for this year (Iron Man, AKA Iron Patriot) he wore it several times before Halloween night. To prevent any sibling rivalry, Bradley and I decided Max would be Iron Man as well. When I offered Max his choice of costumes at the store he seemed indifferent, so Iron Man it was.


Halloween came and the boys happily wore their Iron Men costumes. Instead of trick-or-treating we went to our church's Fall Festival. The boys played games for pieces of candy. Bradley played every game multiple times and came home with a huge selection of candy. It was great to see both of the boys happy and having fun with all of our church family. Bradley did well taking turns and handling transition better than he has in previous years. The progress we continue to see in Bradley makes us happy as we continue to have fun together.

Sunday, November 3, 2013

Dan Marino Talks About Early Intervention

Former Miami Dolphin Quarterback, Dan Marino, talks in a 2005 interview about his son, Micheal's journey on the autism spectrum. Micheal and his family attribute early intervention to Micheal's successful progress. Research continues to conclude that early intervention DOES help children on the spectrum progress toward developmental goals.

http://youtu.be/el1kQ-3Dln4

Speaking from experience, the fear of the unknown can prevent many people from seeking assessment and treatment for their children on the autism spectrum. What will this diagnosis mean for my child and family? Will my child "catch up" to his/her peers? What can I do to help them? What could have contributed to their autism? Will my child be able to lead a "normal" adult life? These questions and many more go through parents' minds and may delay the initiation of assessment or acceptance of an ASD diagnosis.


If you believe your child or a child you know may be on the spectrum, please seek intervention as early as possible. The benefit of early intervention far exceeds the uncertainty of the future. 

"See, the Sovereign Lord comes with power, and he rules with a mighty arm. See, his reward is with him, and his recompense accompanies him. He tends his flock like a shepherd: He gathers the lambs in his arms and carries them close to his heart; he gently leads those that have young. (Isaiah 40:10, 11 NIV)"

I have only recently grasped the extent of God's sovereignty. God knows all, has GREAT plans and the mighty power to make them happen, and is in charge of EVERYTHING. Isaiah 40:11 promises us that God will lead us as parents. However, we must seek God first and pray for wisdom of His desire and the understanding of His will for our children. 

When the uncertain future for your child scares you, take comfort in God's sovereignty. Pray for guidance. Study His word. Seek support from others. Email me! I will pray for you and with you. Watch and be amazed at how God will use the experience to change your heart and bring glory to Him.